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Re-Introduction: Dude with Progressive MS & Crohns/Future Author/Remote Tech Support Worker & Student/Shadowboxer Relearning Life

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mrchuckthetech

Contributor
Read Fastlane!
May 11, 2022
46
57
Atlanta, GA
So, I am calling this a "reintroduction" because when I first posted here: (https://www.thefastlaneforum.com/community/threads/underemployed-dropout-that-never-quite-fit-in-did-i-mention-that-i-was-diagnosed-with-ms-and-even-more-fun.104032/page-2#post-1009153), I was sharing the story of where I was at the time.

At that time, I was newly diagnosed with Progressive MS, having issues with Crohn's Disease), just watched my mom pass, and was unemployed in a new city. I came across "Unscripted " and was amazed with the kind of wisdom in this community...so I jumped in because I wanted to be connect with the community behind that, even if my life was screwed up horribly.

Flash forward a few weeks, I am now working from home doing tech support (remote). I applied and received a scholarship to take Comptia A+ prep courses through Comptia Tech Academy (I am Google IT Support certified.) for the next few weeks, 7-10 PM.

I am also a shadowboxer. I train at home using the PunchLab app, but also train in person with a boxing class for people with movement disorders.I also train (although no sparring) with a traditional boxing group as well. The boxing has really begun to change my body for the better.

As far as eating, I literally gave up on the idea of finding the perfect diet, with both Crohns and MS and a small fridge and a budget that is just starting out; I got frustrated and just focused on simplicity. I eat meals similar to what Mike Tyson ate-oatmeal, rice (I get brown rice), chicken, and include things like eggs, vegetables, and natural fruit juices along with shakes of collagen protein, almond milk, and fruit.i also have a multi-vitamin and fish oil. At this point, if there is a food that I feel is destroying my body, I'll stop eating it...but my goal now isn't to limit food...it's to eat more healthy than unhealthy and see how my body responds.

I am still writing my autobiography.

As far as business like I am returning here because it is time to plan my next move with that. Regardless of my health status (because I believe my primary doctor believs nerve damage might be spreading), I don't work to work until my dying day for someone else. I want to build generational wealth to pass onto my nieces and nephews.

Right now, I have two ideas but i need to flesh them out in order to proceed. That's why I'm lighting a fire here.,,to get inspiration, strategy, and connection so I can have something beore Nov. 1
 
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Jessica Reid

Contributor
FASTLANE INSIDER
Speedway Pass
Apr 9, 2020
41
52
New Jersey
Why before November 1?

And man, I'm so sorry you have progressive MS & Crohns. The symptoms from that can make it tough to work sometimes, but I know you can do it. You can become a fastlaner! Just give your best to each day that you can until you achieve your goals.

I must say I gravitated towards this post because of the headline. I was just recently diagnosed with a nerve disorder called non-length dependent Small Fiber Peripheral Neuropathy (SFPN) - so I have nerve damage affecting my peripheral nervous system, and while I'm thankful it isn't degenerating, it's debilitating.

I also have movement issues too which is an issue independent of my SFPN...my neurologist doesn't know what's causing it yet and will begin testing soon for that but believes I have cramps fasciculation syndrome...

Anyway, I share this to say that I get really frustrated sometimes because there are days that I want to work and can't work because I don't feel good, my body acts up, and I just feel like my disorder slows me down sometimes...but I won't let it get the best of me.

It just means I may take a little longer but I'm going to finish my race and become a fastlaner one day.

And you will too as long as you keep moving forward.

Give yourself grace.

Don't give yourself a hard deadline if you REALLY don't have to...because you're just going to unnecessarily discourage yourself if you can't meet your deadline.

Trust me.

I've set many deadlines and all my failed ideas blew those deadlines out of the water and left me feeling devastated, hurt, and embarrassed.

Plus I think its a selfish foundation to start on...

Nobody cares about me and my deadlines...

They just care about their problems and getting them solved.

And if I know I can help them solve their problem...

No matter how long it takes, I'm going to solve it...

My future customers will be happy I solved their problem...

And I believe the money will come...

That's what I've learned after reading MJ'sl post: called The Successful Entreprenuerial Premise. Check it out one day: GOLD! - MINDSET - Do You Have A Successful Entrepreneurial Premise?
 

mrchuckthetech

Contributor
Read Fastlane!
May 11, 2022
46
57
Atlanta, GA
Why before November 1?

And man, I'm so sorry you have progressive MS & Crohns. The symptoms from that can make it tough to work sometimes, but I know you can do it. You can become a fastlaner! Just give your best to each day that you can until you achieve your goals.

I must say I gravitated towards this post because of the headline. I was just recently diagnosed with a nerve disorder called non-length dependent Small Fiber Peripheral Neuropathy (SFPN) - so I have nerve damage affecting my peripheral nervous system, and while I'm thankful it isn't degenerating, it's debilitating.

I also have movement issues too which is an issue independent of my SFPN...my neurologist doesn't know what's causing it yet and will begin testing soon for that but believes I have cramps fasciculation syndrome...

Anyway, I share this to say that I get really frustrated sometimes because there are days that I want to work and can't work because I don't feel good, my body acts up, and I just feel like my disorder slows me down sometimes...but I won't let it get the best of me.

It just means I may take a little longer but I'm going to finish my race and become a fastlaner one day.

And you will too as long as you keep moving forward.

Give yourself grace.

Don't give yourself a hard deadline if you REALLY don't have to...because you're just going to unnecessarily discourage yourself if you can't meet your deadline.

Trust me.

I've set many deadlines and all my failed ideas blew those deadlines out of the water and left me feeling devastated, hurt, and embarrassed.

Plus I think its a selfish foundation to start on...

Nobody cares about me and my deadlines...

They just care about their problems and getting them solved.

And if I know I can help them solve their problem...

No matter how long it takes, I'm going to solve it...

My future customers will be happy I solved their problem...

And I believe the money will come...

That's what I've learned after reading MJ'sl post: called The Successful Entreprenuerial Premise. Check it out one day: GOLD! - MINDSET - Do You Have A Successful Entrepreneurial Premise?
Thank you so much....I completely understand and am stoked that you actually found this post! An ER doctor thought I had peripheral neuropathy....but then it got even more complicated, but I COMPLETELY understand the frustration that comes with a diagnosis, the medical "merry go round", and just the disruption that comes with that. I went through 12 different appointments after between 2-3 months alone (while working remotely)

And as far as work and deadlines, I adopted the principle of going with the flow from the Tao Te Ching. I am not attached to work or any of these deadlines...because I know I can literally wake up tomorrow and not be able to move because of fatigue..I'm OK with that and will fully respect my body's need to heal.

Getting to this point has been an experiment. When I first came to Atlanta, I was not working and applied for disability. My symptoms were horrible. I had days where I could not move (fatigue), extreme nerve pain at night, pain throughout the day, etc. I wanted to work, but at that time, I could not.

I slowly began to think about work after I reached a point where I was relatively okay. I began shadowboxing for 15 minutes and walked to the trash can in the apartment complex. That was my exercise for the day. I also began vitamins, multi-vitamins, and probiotics. I began to experiment with different diets, most of which were too expensive for my budget and left me more confused than ever.

I did try to be like a Walmart greeter (at least part-time) or a cashier or something once my health got better. That's when I realized the hurdles that the disabled go through in getting a job. Even though the laws are more accomodating, the stigma is still there. A manager will hire someone still in high school versus a 38-year old with a cane and a zombie walk.

So it's been a process.

My family would've supported my decision not to work, but I felt a need to at least try remote (as I did before) for a couple of reasons 1) I wanted to prove it to myself. If my health gets worse, I will drop any work immediately because these jobs ain't loyal 2)Waiting for disability can take a long time. There are articles about people that have died waiting for diability because it took so long. 3)I've read the SS will look for any reason to disqualify you. I figured that SS will look at my last job and ask "Did you work AT ALL after your diagnosis?" I did. Social Security would then say "Well, what changed now?" 4)Healthcare in Georgia is higher 5)My own sanity

I have started the medical process here, but I am highly critical of it. Yes, I was diagnosed but appointments and things are horrible in the current US healthcare system. I was able to get a primary doctor, but getting ANY other help would cost more and involve waiting. I was not scheduled for a neurologist for 6 months and only got to see a neurologist because he "double booked" his appointments.

After all that happened to me in the last 2 years, I am DEFINITELY not loyal to the "sidewalk" path. In fact, I am already tired of it....but I figured I would at least do my best, continue upskilling and break out.

If my health leads me to stop, or change direction I have no problem choosing my health over chasing wages from these employers who don't get a crap about you (usually).

That goes for anything that I am doing....My plans are only my intentions. They are not an actual "thing". My role in all of this is just to be open with whatever pops along the way

That is ONE lesson I have gained from an unpredictable disease as MS....Your destiny is built by working with the cards you have, not the cards you wish you have.
 

Jessica Reid

Contributor
FASTLANE INSIDER
Speedway Pass
Apr 9, 2020
41
52
New Jersey
Thank you so much....I completely understand and am stoked that you actually found this post! An ER doctor thought I had peripheral neuropathy....but then it got even more complicated, but I COMPLETELY understand the frustration that comes with a diagnosis, the medical "merry go round", and just the disruption that comes with that. I went through 12 different appointments after between 2-3 months alone (while working remotely)

And as far as work and deadlines, I adopted the principle of going with the flow from the Tao Te Ching. I am not attached to work or any of these deadlines...because I know I can literally wake up tomorrow and not be able to move because of fatigue..I'm OK with that and will fully respect my body's need to heal.

Getting to this point has been an experiment. When I first came to Atlanta, I was not working and applied for disability. My symptoms were horrible. I had days where I could not move (fatigue), extreme nerve pain at night, pain throughout the day, etc. I wanted to work, but at that time, I could not.

I slowly began to think about work after I reached a point where I was relatively okay. I began shadowboxing for 15 minutes and walked to the trash can in the apartment complex. That was my exercise for the day. I also began vitamins, multi-vitamins, and probiotics. I began to experiment with different diets, most of which were too expensive for my budget and left me more confused than ever.

I did try to be like a Walmart greeter (at least part-time) or a cashier or something once my health got better. That's when I realized the hurdles that the disabled go through in getting a job. Even though the laws are more accomodating, the stigma is still there. A manager will hire someone still in high school versus a 38-year old with a cane and a zombie walk.

So it's been a process.

My family would've supported my decision not to work, but I felt a need to at least try remote (as I did before) for a couple of reasons 1) I wanted to prove it to myself. If my health gets worse, I will drop any work immediately because these jobs ain't loyal 2)Waiting for disability can take a long time. There are articles about people that have died waiting for diability because it took so long. 3)I've read the SS will look for any reason to disqualify you. I figured that SS will look at my last job and ask "Did you work AT ALL after your diagnosis?" I did. Social Security would then say "Well, what changed now?" 4)Healthcare in Georgia is higher 5)My own sanity

I have started the medical process here, but I am highly critical of it. Yes, I was diagnosed but appointments and things are horrible in the current US healthcare system. I was able to get a primary doctor, but getting ANY other help would cost more and involve waiting. I was not scheduled for a neurologist for 6 months and only got to see a neurologist because he "double booked" his appointments.

After all that happened to me in the last 2 years, I am DEFINITELY not loyal to the "sidewalk" path. In fact, I am already tired of it....but I figured I would at least do my best, continue upskilling and break out.

If my health leads me to stop, or change direction I have no problem choosing my health over chasing wages from these employers who don't get a crap about you (usually).

That goes for anything that I am doing....My plans are only my intentions. They are not an actual "thing". My role in all of this is just to be open with whatever pops along the way

That is ONE lesson I have gained from an unpredictable disease as MS....Your destiny is built by working with the cards you have, not the cards you wish you have.
I hear you! I definitely hear you. And okay... Glad to hear nothing that you can control is holding you back from working on your idea until you enter the Fastlane... So I guess the November 1st date meant that you want to figure out your business idea that you're going to 100% focus on by then?

And yes U.S. healthcare sucks....I didn't realize getting on disability took that long. I was so close to take short term disability earlier this year through my employer but I'm managing better now.

And I got lucky... My husband is a Physician at Cornell so I have really great healthcare. So much so in fact, that the doctors text you at this hospital... I wish I was kidding, but my neurologist actually texted me THIS morning saying my Vitamin E is too low and get back on my vitamins.

Honestly, it was all God too. It was only a year ago when my husband accepted his job at Cornell and a year ago, I was completely fine (or so I thought). One month later, I had to go to urgent care because I was in writhing pain during the night that I couldn't shake with regular medication...

My husband told me in the past I needed to see a neurologist and I did a few years back... But the doctor I saw didn't care. He didn't pry any further and I was in denial. And yeah, had I been completely on my own, I would have been royally screwed, in medical debt, and very sick.

Just thankful to God everything has been working itself out.

And everything to come will work itself out as long as you and I show up on our good days and give our best.

Anyway, I'm rooting for you!

We got this.
 
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mrchuckthetech

Contributor
Read Fastlane!
May 11, 2022
46
57
Atlanta, GA
I hear you! I definitely hear you. And okay... Glad to hear nothing that you can control is holding you back from working on your idea until you enter the Fastlane... So I guess the November 1st date meant that you want to figure out your business idea that you're going to 100% focus on by then?

And yes U.S. healthcare sucks....I didn't realize getting on disability took that long. I was so close to take short term disability earlier this year through my employer but I'm managing better now.

And I got lucky... My husband is a Physician at Cornell so I have really great healthcare. So much so in fact, that the doctors text you at this hospital... I wish I was kidding, but my neurologist actually texted me THIS morning saying my Vitamin E is too low and get back on my vitamins.

Honestly, it was all God too. It was only a year ago when my husband accepted his job at Cornell and a year ago, I was completely fine (or so I thought). One month later, I had to go to urgent care because I was in writhing pain during the night that I couldn't shake with regular medication...

My husband told me in the past I needed to see a neurologist and I did a few years back... But the doctor I saw didn't care. He didn't pry any further and I was in denial. And yeah, had I been completely on my own, I would have been royally screwed, in medical debt, and very sick.

Just thankful to God everything has been working itself out.

And everything to come will work itself out as long as you and I show up on our good days and give our best.

Anyway, I'm rooting for you!

We got this.
Thank you! I am on "Day 1" of this "experimen't" with work (meaning full-time production without training wheels). I did get up with sluggish (but not immovable) energy so I cut back on any workouts or anything.physcial related for now.

I also have a 3-hour Comptia training class in the evening also on Day 1

The Fastlane-ready deadline I set is a placeholder. I've taken more "all you need is this one free class to get your business started"...even though I never really followed up on any idea. I am seeking to establish a plan by that date, but if not, i will persist. The one thing I do know is that I don't want to rely on a job (ESPECIALLY in this economy).

Ever since I dabbled in freelance, I realized that I can't live the "pick one job and stay for 50 years" life

But, like I said...all of this is an experiment with health...

I also thank you for the encouragement. God is directing us through this....even though we can only see one day at a time
 

mrchuckthetech

Contributor
Read Fastlane!
May 11, 2022
46
57
Atlanta, GA
So...update

Upskilling: Completing application process for University of the People (Network & Application Security). Yes, it is a free online school that does not compare anything else like the Comptia A+ training I'm doing, but want to keep progressing while I can. This will be after the Comptia Tech Academy course.

Physical: I'm in a weird place because shadowboxing has really transformed my skinny little body. I'm not the Hulk, but I'm like a little teeny Spiderman in training....but another thing I am fighting is another bout of fatigue. It might be because work (especially in a call center) shifts my feeding schedule.

Business: I have no idea because every idea I've had so far is the kind that breaks the CENTS commandments

Book: Up to nearly 6K out of 30K words
 

Jessica Reid

Contributor
FASTLANE INSIDER
Speedway Pass
Apr 9, 2020
41
52
New Jersey
Thank you! I am on "Day 1" of this "experimen't" with work (meaning full-time production without training wheels). I did get up with sluggish (but not immovable) energy so I cut back on any workouts or anything.physcial related for now.

I also have a 3-hour Comptia training class in the evening also on Day 1

The Fastlane-ready deadline I set is a placeholder. I've taken more "all you need is this one free class to get your business started"...even though I never really followed up on any idea. I am seeking to establish a plan by that date, but if not, i will persist. The one thing I do know is that I don't want to rely on a job (ESPECIALLY in this economy).

Ever since I dabbled in freelance, I realized that I can't live the "pick one job and stay for 50 years" life

But, like I said...all of this is an experiment with health...

I also thank you for the encouragement. God is directing us through this....even though we can only see one day at a time
That's certainly good to hear! Keep me updated on your progress!
 
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mrchuckthetech

Contributor
Read Fastlane!
May 11, 2022
46
57
Atlanta, GA
Physical: I felt really rested when I got up...and then realized that I overslept an hour of workI I think MS is up its old tricks again. I may have to modify my morning schedule to get more than 8 hours (The thing is, some days I don't need that much,so I strive for 7-8 hours per day_

Upskilling: I got accepted to the University of People for their certificate program earlier than I expected...like TODAY!

Business: Still thinking

Creativity: Didn't work on book today
 

heavy_industry

Silver Contributor
Speedway Pass
Apr 17, 2022
246
551
You're the man!

Congratulations on what you've done thus far. I'm sure you will find a way to stabilize your condition, so keep on fighting!
I don't want to sound like a broken record, but I would jump straight into the complete elimination diet for the rest of the year to see what happens. Health is #1.

Good luck!
 

mrchuckthetech

Contributor
Read Fastlane!
May 11, 2022
46
57
Atlanta, GA
You're the man!

Congratulations on what you've done thus far. I'm sure you will find a way to stabilize your condition, so keep on fighting!
I don't want to sound like a broken record, but I would jump straight into the complete elimination diet for the rest of the year to see what happens. Health is #1.

Good luck!

Thank you!

I plan on doing a better elimination diet when I move to the new apartment. I'm currently in a temporary impromptu arrangement (sharing an empty room provided by family after i moved to Atlanta), so I'll be doing a better elimination diet in the future.

Yes, I know that the microwave or caffeine (from Keurig) or some of the processed food that I'm eating....but I'm doing the best where I am with plans to keep on improving

I don't know if it's not too late, but I can only hope that my body is working with the steps I am taking and will hold on for as long as it can
 
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mrchuckthetech

Contributor
Read Fastlane!
May 11, 2022
46
57
Atlanta, GA
Physical: Completed shadowboxing for an extended session to prep for tomorrow's Gauntlet (71 minutes of workout). If I'm not calling the Emergency Room after that workout, I am looking to get a heavy bag and do weekly classes with a boxing group specifically designed for people with movement issues.

Update: I'm going for the Gauntlet now

Upskilling: Behind on this...but this is only prep. The class officially begins on Monday for the Comptia course. I have to finish paperwork for the University of People course.

Business & creativity: Behind on writing my autobiography while I'm living out the story
 

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